Teilen Sie Ihre ungewöhnliche Geschichte

Wenn Sie Ihre Chordome-Geschichte in Ihren eigenen Worten erzählen, können Sie anderen in unserer Gemeinschaft helfen, sich besser verbunden zu fühlen und auf alles vorbereitet zu sein, was vor ihnen liegt. Wir laden Sie ein, das untenstehende Formular zu verwenden, um Ihre Erkenntnisse mit anderen zu teilen, die davon profitieren können, dass sie nicht allein sind. Wir möchten Sie ermutigen, sowohl über die Höhen als auch über die Tiefen Ihrer Reise zu berichten, um anderen ein realistisches Bild davon zu vermitteln, was sie erwarten können.

(Die Geschichten können von unserem Team aus Gründen der Länge und Klarheit leicht bearbeitet werden).

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Uncommon Story questions

Can you describe how you came to be diagnosed with chordoma, what treatment(s) you underwent, and the general timeline of your chordoma journey?:

How are you doing now?:

Who or what has been most helpful during your chordoma journey? What were some things that made your experience a little easier? Were there any resources or support you wish you had more of?:

What are some of the most important things you've learned throughout your experience with chordoma that could be helpful for other patients to know? What advice might you offer to someone who is newly diagnosed with chordoma?:

What role has the Chordoma Foundation played in your story? (Examples might include speaking with a patient navigator, attending a support group, finding resources on our website, etc.) :

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